The only computer available to me right now is in the playroom. So behind me to the right is a chime-type melody from a computer game with occasional characters talking in a foreign language I cannot identify and behind me to the left is an electronic harpsichord sound playing "Jingle Bells" and " Do Re Mi" while the mother sings along and speaks to her daughter in Japanese. May have to keep this post short.
Pretty quiet last night. Lauren goes from sleeping to wanting to be somewhere else. Like home. She is teary and whiney and all I can do is sympathize and give her hugs. A couple of times she would become unsettled and stretch in funny ways that I could not tell if they were seizures or not. So I would hit the EEG monitor button and make notes on the time and type of seizure. The button just marks the place on the digital recording, it does not set off a gong like the hard wired rooms have. Not that we need that. Her seizures are not that severe. She also noted a couple of times to me that she was having seizures (the 8-10 year old kids behind me now want to play x-box, but the play therapist won't let them play Halo or Call To Duty) so I marked them also. The curious thing is that when I met with the neurologists today, they reviewed those marked areas and said they did not see seizures. So that is promising.
Her head still hurts, but I don't think as much as it used to. She complains of blurry vision (so no reading, movies, cards, etc.) and she is generally unhappy and bored. She wants to feel better, lose the EEG grids, be more mobile. Maybe in the next couple of days those things will fall in place for her.
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Damn, just lost two ultra poetic responses trying to post my comment. So I am down to this, your compelling blog allows us in Chris, and I thank you so much for that. The gale force winds and sideways rain reflect the kind of storm you all have weathered. We Faude's love you all so much.
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