Thursday, March 4, 2010

Not ideal

The report is that the seizures are to be coming from both sensory and motor areas in the right hemisphere of Lauren's brain.

There are 3 options.

1) Do nothing, remove the grids but nothing else and go back to drug therapy. Seizures will continue, perhaps get worse as she ages, and hope for a miracle drug. No one supports that idea.

2) Remove a small portion with a less than 10% chance of being seizure free. There would be little loss of senses or strength in her left limbs. She would lose her ability to "sense" seizures coming on which could be dangerous. More could be taken out later if necessary.

3) Remove a larger area that would include all the "hot spots" as well as the dysplasia. This would give her a 50-70% chance of being seizure free. She will lose senses and strength in her left (non-dominant) shoulder and leg. She will need to go to rehabilitation to regain as much function as possible, but most likely will always need to wear an ankle brace. She will be able to walk, but may have a limp. Time will tell depending on what they see when they operate, how much they actualy take out, and how well she rehabilitates.

Lauren wants to pursue option 3 as it gives her the best chance for a seizure free life. We have been meeting with Neurologists and a Physical Therapist all day and are waiting to hear from Dr. Storm tonight. He has been busy all day with surgery.

Alot, alot, to consider. Too much to cover now. We are following Lauren's lead and waiting to meet with the Neurosurgeon. I'll follow up later.

Thanks to you all for your concern and well wishes.

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