From emails to blog

I wonder how many people start their first blog with "Here it is, my first blog!"

"Here it is, my first blog!"...

My attempt at efficiency, the emails were getting out of control, Sandra had started a scrapbook, journal, whatever... any way, Lauren will be horrified.

Sandra went home, I stayed the night, Lauren and I read, she watched some TV, lights out at 10:30.

The nurse was in every hour, but otherwise, we slept well. 9 hours for me, she is still snoozing.

Poor kid is taking medication for her pain, which makes her sick, which leaves her hungry, she tries to eat, then gets sick, and on and on.

We are just biding time at this point. Waiting for seizures to begin. It was like this in DC during the summer when we went to get a second opinion. No activity at first, then light activity for a couple of days. We were ready to leave, then decided to stay one more night for something a little more definitive and boy did we get what we asked for... multiple grand mals.

So we wait.

Lauren has been great. A real trooper. Like I said on Facebook, Lauren is my superhero. I wonder if she knew what she was getting into if she would choose to do this again. I wonder if any of us would. Sandra is holding up well. We are both tired, she is so much better at dealing with visitors. I pace too much, she talks it through.

Jessica was here till yesterday noon. She hated having to return to DC. She has been great for Lauren also. I am hoping this will be a real sister bonding moment for them. James is in and out. He has school and we are trying to keep things as normal as possible for now. He was there the whole time in DC (not to mention the day to day), so he knows what is what. Despite their bickering, they are thick as thieves. I love to see their love for each other, which they themselves cannot yet fully understand.

OK, nothing else new to report. I am kind of nervous about posting this. Who will see it, how will it be judged, will Lauren ever forgive me? I guess everyone asks those questions too. Here goes...