Sunday, February 28, 2010

Looking for the Goldilocks seizure

Spoke to Dr. Dlugos re the seizure activity and what it means. He said the intercranials are too small, they point to that northeastern region discussed in the previous posts (see avoiding infection and the NCAA tournament). The grand mals are too large though, pointing to the region east of the y-axis center line, but extending extensively into the region south of the x-axis center line. What that means is that if we operated on that information, they would remove so much that Lauren would lose feeling in her left shoulder.

So the plan is to put her back on some of her medication, Dilantin @ 50 mg x2 so that she will have smaller, more normal seizures. Hopefully, they will allow us to pinpoint the source for less invasive surgery.

I think they need to overstate the situation as they want us to encourage us to follow their plan. Of course this will take more time, but we want to be as accurate as possible. Eventually, it will come down to weighting cost/benefits. What would you trade for a seizure free life? Hopefully, the impact will be minimal.

Otherwise, Lauren has been feeling well, eating well, and generally happy. She is happiest with her peers here. Takes her mind off of things.

Jessica took off all week, so she will spend the night tonight with Lauren. Looking forward to a conjugal visit.

1 comment:

  1. Hang tough and know that there are so many of us out here following your struggle, wishing you the best, offering our good vibrations and sending our love to all of you.
    Jojo

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