About 9 pm yesterday, Sandra, James, my sister Barbara, and the Borellis left and it was just Lauren and myself. They took us down for an MRI, which they say is standard after surgery. It was fairly routine and Lauren seems to tolerate them well (without sedation). It stinks though because she has to make 4 transfers, bed to stretcher, stretcher to machine and back. It does provide an opportunity to change her bed, but the moving around cannot be easy for her. At one point near the end, probably the loudest phase (I think they call it differential), her heart rate monitor went really high, like 220+. They stopped the machine and the nurse came in to check on her, the monitor returned to normal, Lauren said she was fine. I figured it must have been a false reading or something. They left the room again, waited a minute, didn't start the machine up again, then came in and said "all done". Go figure.
We got back into the room around 10-ish and the EEG team came up to connect all of her wiring. There are blank wires coming out of her incision with no leads or anything connected to them. The EEG team connects them to terminal blocks that are connected to these small portable terminals in 2 (left and right?) nylon cases about the size of a portable CD player. From there flat wires go into the EEG cart (these portable carts are named "the Carlos Ruiz", "Phillie Phanatic", "The Charlie Manuel", etc) CPU which has a video camera on it and a screen showing the EEG reading and video feed, all of which is digitally recorded. When Lauren has a seizure, we are supposed to hit a push button which marks the location of the seizure activity for future reference.
Anyway, no seizures last night. Pretty quiet. Lauren slept well, I tried but gave up and watched a movie till 3:30 am. A couple of helicopters came in overnight, we are in on the 7th floor just below the helipad, so it is loud. The worst thing about it is not the noise, just what they represent. Some kids life is in danger. Sad.
This morning was a little rocky. Headaches and nausea. They gave her some morphine and that settled her down. The nurse suggested that pain could be a source of her nausea. I anticipate we will move back to the neurology floor today. Sandra, Jess and Langley just arrived.
More helicopters this morning. Three in a row, reminded me of MASH.
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I like when Lauren smiles- and she smiles especially when kids visit her- ( a special thanks to Torrie)
ReplyDeleteHey guys- Ill be back tomorrow- first chance i've had access to the internet- the scanner often makes kids ekg leads look like their heart rate is WAY more than it actually is bc it is shaking- we can usually tell its wrong by doing a blood pressure and seeing that that is normal (then again most of my kids aren't awake to tell us they're okay- she's so brave to not get sedation :) ) so im positive hers was a false reading :). good luck today- see you tomorrow. xo- carley
ReplyDeleteThanks Carley, see you tomorrow.
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