The Neurologist, Dr. Dlugos told us today that they want Lauren to go back to surgery tomorrow to place an inter-cranial grid over the left hemisphere of her brain. The Neurosurgeon, Dr. Storm, will do that tomorrow morning, about 9-10am.
Apparently, the whole PREP (Pediatric Regional Epilepsy Program) team has conferred and decided this is the best course to take. Lauren has been taken off of two of her three medications and today they started weaning her off the third (Dilantin). Tonight, she will not even get the Dilantin dose. So, off all meds.
For the surgery tomorrow, seizures will not be an issue as she will be unconscious and seizures do not happen in an unconscious state.
Unfortunately this means three surgeries instead of two, but I suppose if it assures the best outcome it will be worth the effort.
Poor Lauren. She is surely being tested. She certainly has been couragious. Sandra had not told her yet about the plan as it had not been confirmed by Dr. Storm, however, he showed up while Sandra was out of the room and spilled the beans! Never a dull moment in CHoP.
So, tomorrow we will be back in the PICU (Pediatric Intensive Care Unit) for 24 hours of post surgery stabilization, then back to Neurology. With both grids in place and the medications gone, we will be awaiting seizures and a treatment plan.
Crank up the prayer chains, your love, support and good vibes are greatly appreciated.
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Thank you so much for keeping me up to date. While I wish I could be there, I know we need to spread out the love and not overwhelm you guys. You guys are on my mind all the time. All of us (and my friends too) are rooting for you. Love, Leslie
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